Methodist empty and TBI support group

January 9, 2024

Ok, I don’t even know where to start today. In the morning, I did my meds at 7:22 am and then went to Methodist around 9:30 am. Today, the volunteer Margarita, from Mexico, was there, and she said she can really only work the very early mornings, and that’s probably why I haven’t seen her for a few weeks. I also failed to take a single photo there. The only picture I have is a random one I took of the desk when I was thinking, “too bad I failed to get a pic when people were here.” 

I stayed there pretty late, maybe done around 2pm. Nothing else really significant happened, that I can remember. I had part of a slice of pizza at the end just because I felt like it would be bad to eat nothing for lunch. Then, I went back to my house to pick up some stuff, like tea. I also checked my mail, getting some Christmas cards, and randomly remembered I wanted to pick up a maroon flannel and a scrunchie, even though I hadn’t written it down. Then I went to Papa’s. We decided I would have my meds before going to the TBI support group at night. He also made me some low fat split pea soup for before and left me with a few breaded shrimp with the right fat count for the meds later. 

So, I did the meds at 5:11pm tonight. Yet again, it made me eat even though I wasn’t even the tiniest bit hungry. I do hate this requirement that I have medication with 11 to 14 grams of fat. It often makes me eat when I definitely would not have otherwise. One of the biggest things I’m suffering from now is “lack of appetite.” I think I told a lady at Methodist that today, and she told me she suffers from the opposite problem (like most people do).

Then, Kathy picked me up to go to the TBI support group. Today, for the first time, CRP was brought up. There was someone else who didn’t dislike it as much as I did, but I talked about how passionately I hated it. Apparently, they’re trying to recreate a new program called “beyond brain injury” run by some of the same people but not the same thing. Also during the group, I literally made a list of all of the common symptoms of TBI that I do not suffer from. My list includes things like dizziness, vision problems, balance issues, light sensitivity and nausea (which I occasionally have from my cancer, not the TBI, I believe).

As far as pictures, I’ve got my terrible Methodist photo, a background pic of the support group, and also a highlight of the facilitator Rick at the group, and the BeReal I took there as well. 

The other very random thing is that I messaged Liam, Hannah, Caroline about where to meet Friday. and asked Suheily to maybe look at my article translation some time. I’m 7/10 pages dne right now.